TintDude Posted August 20, 2014 Report Share Posted August 20, 2014 MY heart goes out to any one with this or any other incurable disease.I'm on the skeptical side when it comes to charities lately. When you look at how much they make and what they actually spend it on, it's surprising. Usually less than 5% is given -in their own words- to encourage research and raise awareness. I'm not sure exactly how you purchase encouragement, but OK. Then you look at how much the owners and staff make.... And that's best case scenario, is other cases it turns out the money went to a completely different and objectionable cause. Oh and what if the disease actually got cured? Some pretty big businesses would be out of business overnight, it's not in their interest to actually find a cure. I don't know, just skeptical I suppose. Link to comment Share on other sites More sharing options...
Saul Posted August 20, 2014 Report Share Posted August 20, 2014 I respect every one's opinion mine is this . You can do Good to any one if it is your will, no need for this kind of publicity just to be seen . At this very instant pobably some one needs help just around the corner, and it is not about money but kindness. Link to comment Share on other sites More sharing options...
Roach Posted August 20, 2014 Report Share Posted August 20, 2014 I agree with Ric, and Saul. Along the lines of Saul's comment - if this brings awareness to ASL, and because of it you come across someone who has it, do an act of kindness towards that person. That will go much further then anything else... IMO. Link to comment Share on other sites More sharing options...
MikeMN Posted August 20, 2014 Report Share Posted August 20, 2014 I have learned about ALS just recently, I have been seeing a lot of doctors lately and have had a lot of tests done, MRI 2 of them and scheduling a 3rd at the moment, an EMG has been done as well, the last visit was with a Doctor in Physical medicine and rehabilitation and spinal cord injury medicine, he wants me to see a Neurologist to rule out neurologic motor neuron disease disorder , ALS itself is a motor neuron disease. One thing for sure is that I will have neck surgery again for cervical stenosis and fusion, could be months or years. I am not letting it bring me down, however the waiting sucks. Link to comment Share on other sites More sharing options...
TomTint Posted August 20, 2014 Report Share Posted August 20, 2014 I have learned about ALS just recently, I have been seeing a lot of doctors lately and have had a lot of tests done, MRI 2 of them and scheduling a 3rd at the moment, an EMG has been done as well, the last visit was with a Doctor in Physical medicine and rehabilitation and spinal cord injury medicine, he wants me to see a Neurologist to rule out neurologic motor neuron disease disorder , ALS itself is a motor neuron disease. One thing for sure is that I will have neck surgery again for cervical stenosis and fusion, could be months or years. I am not letting it bring me down, however the waiting sucks. Link to comment Share on other sites More sharing options...
Tintguy1980 Posted August 20, 2014 Report Share Posted August 20, 2014 MY heart goes out to any one with this or any other incurable disease. I'm on the skeptical side when it comes to charities lately. When you look at how much they make and what they actually spend it on, it's surprising. Usually less than 5% is given -in their own words- to encourage research and raise awareness. I'm not sure exactly how you purchase encouragement, but OK. Then you look at how much the owners and staff make.... And that's best case scenario, is other cases it turns out the money went to a completely different and objectionable cause. Oh and what if the disease actually got cured? Some pretty big businesses would be out of business overnight, it's not in their interest to actually find a cure. I don't know, just skeptical I suppose. I respect every one's opinion mine is this . You can do Good to any one if it is your will, no need for this kind of publicity just to be seen . At this very instant pobably some one needs help just around the corner, and it is not about money but kindness. For me, I've never understood America's obsession with causes. Link to comment Share on other sites More sharing options...
vquestfilms.com Posted August 20, 2014 Report Share Posted August 20, 2014 I watched my friend dye from ALS... terrible disease. I hope you are OK Tom. So many causes out there for so many problems, how do you bail out a ship with a Dixie Cup? Link to comment Share on other sites More sharing options...
TomTint Posted August 20, 2014 Report Share Posted August 20, 2014 I watched my friend dye from ALS... terrible disease. I hope you are OK Tom. So many causes out there for so many problems, how do you bail out a ship with a Dixie Cup? I'm fine Rob, I think Mike may be the one with a possible medical issue. .. Hopefully not. Link to comment Share on other sites More sharing options...
vquestfilms.com Posted August 20, 2014 Report Share Posted August 20, 2014 I watched my friend dye from ALS... terrible disease. I hope you are OK Tom. So many causes out there for so many problems, how do you bail out a ship with a Dixie Cup? I'm fine Rob, I think Mike may be the one with a possible medical issue. .. Hopefully not. Whoops, sorry misread it. Mike I sincerely hope all is well. Link to comment Share on other sites More sharing options...
smiley Posted August 21, 2014 Report Share Posted August 21, 2014 http://www.huffingtonpost.com/2014/08/20/anthony-carbajal-ice-bucket-challenge-als_n_5696085.html might wanna skip to 2 minutes :P but all i needed to see. Link to comment Share on other sites More sharing options...
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